Survey on Stigma and Neurological Disorder

The purpose of this survey is to identify factors contributing to stigma against people living with neurological disorders in order to develop strategies that will help to combat it. Stigma and discrimination occur when people are treated unfairly because they are seen as being different from others. This survey will explore how you have been affected by stigma due to living with a neurological disorder.

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The impact of positive reappraisal coping on the wellbeing of caregivers of those with Huntington’s Disease

The purpose of this study is to look at the experiences of caring for an individual(s) with Huntington’s Disease. Previous research has indicated that high levels of stress are reported by carers and that high stress levels have an impact on physical and psychological health. We are interested in the emotional wellbeing and quality of life of caregivers and in the ways in which they cope with the demands of caregiving.

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Covid 19 Wellbeing survey

The purpose of this survey is to learn more about how young people impacted by HD are coping during the corona virus lockdown we are currently experiencing globally, and how we may be able to help.

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