IMPORTANT: Before participating in a study, talk to your health care provider and learn about the risks and potential benefits.


The purpose of this study is to look at the experiences of caring for an individual(s) with Huntington’s Disease. Previous research has indicated that high levels of stress are reported by carers and that high stress levels have an impact on physical and psychological health. We are interested in the emotional wellbeing and quality of life of caregivers and in the ways in which they cope with the demands of caregiving.

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The purpose of this survey is to learn more about how young people impacted by HD are coping during the corona virus lockdown we are currently experiencing globally, and how we may be able to help.

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