Huntington´s Disease (HD) is a hereditary, neurodegenerative illness that affects people of all races worldwide with no cure as of yet. Therefore, the European Huntington Association and the German Huntington Association, created the HDtrial finder in an effort to accelerate research that might ultimately find a treatment or cure for HD. The HDtrial finder is an online tool that can help you easily find observational studies and clinical trials in your area in addition to online surveys.
Clinical trials are research investigations in which people volunteer to test new treatments, interventions or tests as a means to prevent, detect, treat or manage various diseases or medical conditions. Some investigations look at how people respond to a new intervention and what side effects might occur.
Many people don’t think about clinical research prior to a diagnosis; it may even seem frightening. But participating in research doesn’t have to be scary, unpleasant or time-consuming. It can be an empowering and impactful opportunity for people with and without Huntington’s disease (HD) to help find better, more effective treatment. Want to make a difference and help advance the search for a cure? Consider taking part in research. You have the power to help researchers understand how Huntington’s starts and progresses.