FOR US - BY US

HDTrialFinder is developed by the European Huntington Association (EHA). EHA is a non-profit umbrella organisation for all Huntington’s disease associations in Europe. Per 2019, we have 44 member associations in 29 European countries. EHA is managed by Huntington’s disease family members, professionals and volunteers. That is why the HDTrialFinder is a tool made for us, by us.

HDTrialFinder is the first and only European platform where all Huntington’s disease trials and studies are presented in plain language. We have developed this  webpage to enable you to get more information about clinical trials and make it easier to participate. Our goal is to give correct, plain and relevant information about Huntington trials. We also provide contact information, so you know whom to contact if you want to express interest to join a trial or if you have further questions. 

Our mission is to empower and engage the Huntington community and inform you of our vital role in achieving the ultimate goal: effective treatment and – hopefully –  a cure for Huntington’s disease. 

FUNDING

HDTrialFinder is funded by different organisations (listed below), as a service to the entire European Huntington community. The content is in no way influenced by our funders as we keep full editorial independency, nor have they asked to have any influence over the content. HDTrialFinder is continuing to raise funds in order to keep the site running, updated and relevant at all times.

OUR TEAM

Astri Arnesen

President | European
Huntington Association

Svein Olaf Olsen

President | International Huntington Association

Michaela Winkelmann

President | German Huntington Association

Maria Phyllis Kitema

Organizational secretary

Claudia Azañedo Vázquez

Communication Manager | European Huntington Association