ONGOING SURVEYS

Before participating in a study, talk to your health care provider and learn about the risks and potential benefits.

People affected by Huntington’s Disease (HD) does not get the health services they need despite the devastating impact of the disease. HD is genetic and fatal, and families are hit hard and suffer. 

There is no curative treatment, but patients can be helped to live better lives and manage symptoms if they get access to the right health services and support.   

Today, only a minority of people affected by HD get the support and help they need.  But there are solutions to this problem – expertise and knowledge exists – we only need to provide better access to all patients. 

Sign the EHA consensus Statement