IMPORTANT

Before participating in a study, talk to your health care provider and learn about the risks and potential benefits.

The new EHA project called “Moving Forward” aims to bring two specific groups within HD families closer to research and trials: people at risk for HD and people who tested positive for HD but do not show yet disease symptoms (premanifest HD stage).
The EHA has created an online Survey to understand the needs, worries and wishes of these two groups regarding research participation.
 
The Survey is completely anonymous (no personal information is collected, such as IP or e-mail addresses), easy to fill and brief – it will only take around 10 minutes to complete.
Participation in this Survey is voluntary, and, while it may not benefit you directly, it may improve the experience and knowledge of HD families regarding research. The Survey results will help the EHA to better understand the current situation in your country and propose any necessary changes.