COCOON

Recruiting

SPONSOR

University Hospital, Lille

PARTICIPANTS

90

The objectives are to better document the psychosocial status and needs of caregiver of HD patients and understand the dyad functioning, facing the disease at various stages.

Estimated Study Completion Date: February 2021

Ages Eligible
for Study:

30 Years to 60 Years (Adult)

Sexes Eligible
for Study:

All

Accepts Healthy Volunteers:

Yes

Inclusion Criteria

For patient :

  • HD, CAG > 36, motor UHDRS > 5
  • Being able to communicate with the investigator

For both spouses :

  • Living together since at least 5 years
  • 30 to 60 years old

Exclusion Criteria

For patient :

  • Other chronic neurologic disorder

For both spouses :

  • Psychiatric disease
  • Unable to participate, incl read, understand and sign the informed consent

LOCATIONS

France

  • Trial Site: Hôpital Roger Salengro, CHU Lille.
  • Address: Lille, France, 59037
  • Contact: 0320445962  

CONTACT

Clémence SIMONIN, MD

+ 33 0320445962

clemence.simonin@chru-lille.fr