COCOON

Recruiting

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SPONSOR

University Hospital, Lille

PARTICIPANTS

90

The objectives of this study are to better document the psychosocial status and needs of caregiver of HD patients and understand the dyad functioning, facing the disease at various stages.

Ages Eligible
for Study:

30 Years to 60 Years (Adult)

Sexes Eligible
for Study:

All

Accepts Healthy Volunteers:

Yes

Inclusion Criteria

For patient :

  • CAG > 36, motor UHDRS > 5
  • Being able to communicate with the investigator

For both spouses :

  • Living together since at least 5 years
  • 30 to 60 years old

Exclusion Criteria

For patient :

  • Other chronic neurologic disorder

For both spouses :

  • Psychiatric disease
  • Unable to participate, incl read, understand and sign the informed consent

LOCATIONS

France

  • Trial Site: Hôpital Roger Salengro, CHU Lille.
  • Address: Lille, France, 59037
  • Contact: 0320445962  

CONTACT

Clémence SIMONIN, MD

+ 33 0320445962

clemence.simonin@chru-lille.fr

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dictionary:

Inclusion Criteria

A type of eligibility criteria. These are the reasons that a person is allowed to participate in a clinical study.

new FB feed (19)

dictionary:

Exclusion Criteria

A type of eligibility criteria. These are reasons that a person is not allowed to participate in a clinical study.

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CAG repeat

The stretch of DNA at the beginning of the HD gene, which contains the sequence CAG repeated many times, and is abnormally long in people who will develop HD. (from HDbuzz.org)

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Contact

The name and contact information for the person who can answer enrollment questions for a clinical study. Each location where the study is being conducted may also have a specific contact, who may be better able to answer those questions.