COCOON
Recruiting
The objectives are to better document the psychosocial status and needs of caregiver of HD patients and understand the dyad functioning, facing the disease at various stages.
Estimated Study Completion Date: February 2021
Ages Eligible for Study:
30 Years to 60 Years (Adult)
Sexes Eligible for Study:
All
Accepts Healthy Volunteers:
Yes
Inclusion Criteria
For patient :
- HD, CAG > 36, motor UHDRS > 5
- Being able to communicate with the investigator
For both spouses :
- Living together since at least 5 years
- 30 to 60 years old
Exclusion Criteria
For patient :
- Other chronic neurologic disorder
For both spouses :
- Psychiatric disease
- Unable to participate, incl read, understand and sign the informed consent
COUNTRIES
CONTACT
Clémence SIMONIN, MD
+ 33 0320445962
clemence.simonin@chru-lille.fr
France
- Trial Site: Hôpital Roger Salengro, CHU Lille.
- Address: Lille, France, 59037
- Contact: 0320445962