SATELLITES- ScATtEred Rare Disease Biobanks: a Model of Sample/Data Collection With susTainablE and Shared Criteria

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SPONSOR

IRCCS Policlinico S. Donato

PARTICIPANTS

800

The objectives of this project will be:

Aim 1: Establishment of the Scattered RD(rare disease) Biobank as a network of RD biobanks in order to overcome RD biological sample scarcity and to collect samples and data of high quality available to the scientific community for future collaborative studies in national and international co-operations

Aim 2: Harmonization, Standardization and Network Governance

Aim 3: RD biobank upgrading and creation of new RD biobanks.

Huntington`s Disease will be among one of the rare disease

Ages Eligible
for Study:

Child,  Adult,  Older Adult

Sexes Eligible
for Study:

All

Accepts Healthy Volunteers:

Yes

Inclusion Criteria

patients with a rare disease or family members

Exclusion Criteria

None

LOCATIONS

ITALY

TRIAL SITE:
San Donato Milanese, Milan Italy

Address: BioCor Biobank IRCCS-Policlinico San Donato

CONTACT
Rosanna Cardani, PhD
Phone Number: +390252774644
Email:rosanna.cardani@grupposandonato.it

Recruiting