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“The patient community needs researchers. They look for new ways to develop effective treatments. Researchers also need the patient and rely on their participation to ensure research is meaningful. Patients are not only subjects, but active actors in the discovery of new treatments. With such a changing landscape in the Huntington’s disease research field now is not the time to say: “someone else will do it”. That someone is YOU. We are the experts. The ones living or caring for someone with Huntington’s. We all have a part, no matter how small, to play in research. “​

DINA DE SOUSA 
Board Member | European Huntington Association

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